Rowen Legacy
Rowen was a happy and healthy 4 year old little boy until he was suddenly diagnosed with Medulloblastoma in June 2024. Our family began treatment at Boston Children’s Hospital as this was our best shot at remission and the closest proton beam center. As a large family of seven, we struggled to find housing — spending over 12 weeks in a hotel due to waitlists and state occupancy limits. The financial and emotional toll was overwhelming as we tried to focus on Rowen’s treatment. We even sold our home in Maine to stay afloat.
Despite it all, Rowen faced every challenge with a smile. He completed six weeks of proton radiation and five cycles of chemotherapy with strength and courage beyond his years. In March 2025, Rowen passed away unexpectedly from complications related to treatment.
Out of our heartbreak, Rowen’s Legacy was born a nonprofit created to help other families facing childhood cancer.